Cole Turns 3!

Cole had a hard week. He has not been sleeping well and had rescue meds three times. That has not happened for a while. He seemed to capitalize on his birthday parties, having one on Sunday right after our little family dinner/party and another on Sat morning before everyone came over. The other was in the middle of the week, during a set of storms. Barometric pressure seems to be effecting him more and more lately. He also figured out how to disconnect the line from the feeding pump...while it was running! Probably harder on mom than him!Once again, his seizures are changing and creating a whole new pattern. This roller coaster ride called Dravet always has plenty of twists and turns. He still is the cutest little boy around (not so little anymore...tear)! This picture is where he is blowing out his Aunt's candles, at a totally different party, and accidently singes his eyelashes! It's a good thing they are so long!As expected, Cole really did not care too much for any celebration. He did enjoy blowing out the candles and requested that we do it again and again, demanding different songs such as Jingle Bells and Jesus Wants Me For A Sunbeam. Whatever he wants, right?! He couldn't have cake, so appeasing his song preferences was not too much to ask. Year 2 brought so many changes; I wonder what year 3 is going to bring.We had a combined birthday party and good-bye open house. We tried the super hero theme since that is how Cole announces himself to anyone that is new. We call the g tube his "superhero button" and try to make him feel like it is special. He has started taking it one step further and introduces himself in a loud voice saying, "I'm a SUPERHERO!", then promptly flashes the unsuspecting person and shows them his button. Funny the first time, not so funny in places like church and the hospital. Oh well ;) Here are my attempts at fondant cakes. What can I say? I'm just not Cristine!

Nemo- brought to you with help from the D family and Super HeroThe move is finally starting to be real this weekend. We have started selling our furniture and the house is starting to really look like it is empty and in "move mode". Our beloved girls are also leaving us. We know that they are going to a great home where they will be loved and spoiled. I'm just wondering how Cole is going to take it when he can't go out to the garage to visit or look out the window for 'Lani and 'Ily. 10 months without a dog is probably going to be really hard for him. Hopefully we can get him into school right away once we move.

Happy Birthday Super Cole! We love you!