Mr Incredible

Cole has some Obsessive Compulsive tendencies. Things like turning off all of the lights in the house before he goes to bed, drinking his cream only from the blue cup with the green lid and his movie preferences. Lately, it's been The Incredibles.

I am not even sure how many times a day he will watch this movie. With the glorious iPad, he can navigate to certain scenes with a few touches and he will watch them over and over and over and over again. At least during the Woody phase we could rotate movies. There is only one Incredibles. Every time the nurse came in, he was watching it.

We have had a busy week, but my little guy is a superhero. Just ask him ;)

Momma, I a superhero!

He has been doing great this week. Having increased complex-partial seizures, but today *knock on wood* is 3 whole weeks without a GTC! That is the longest he has gone in months and months! It seems that the new diet ratio is really making a difference. I am sure that having all of his meals now that we have the tube is making a difference too. Loratab during the beginning of the week took care of the pain. We are now just using Tylenol suppositories when it seems like he needs it.

The tube has been great so far! It has been really tender, which is expected. We got it checked out yesterday for some oozing and a hard spot, but things seem to be fine. We follow up with the surgeon on Wed. I think it was Thurs that we had our first ever episode of no crying or screaming or spitting involved "med pass". He just sat and watched TV while I pushed most of the meds through the tube and he took his Keppra by mouth like a breeze. It was a big moment for me. For both of us.He did not want to eat on Thurs evening, so I just hooked him up to the pump and he watched The Incredibles (of course) while the pump did the eating for him. No pain, no fuss. It was awesome!

He truly is incredible.
Here he is with his incredible friend, Bertrand. B turned 3 years old this week, proving multiple doctors wrong. Talk about incredible. We love you B! Thanks for letting us come to your party!