We have had a few nice surprises in the last month. The g tube is now 4 weeks old, and has been more beneficial than tedious. The childrens group from our church wrote Cole Get Well cards the week he had his surgery. It was a thoughtful gesture, as he has not been able to attend Primary for the majority of this year.
One of our readers took a lot of time and care and sent Cole a package. She was introduced to our blog through a mutual friend when we were fundraising for Cole's service dog. Inside was a beautiful pieced quilt, portraying some of the things that my little man loves best. Bubbles, CARS, football, basketball, dogs (of course) and purple and orange to represent Dravet. The time that she spent thinking about this project and then actually doing it, brought tears to my eyes. Thanks Y, all the way from Texas!
Cole really wasn't interested Christmas morning, like I thought he would be. He finally understands the concept of presents so I thought he would be elated to see a room full of them. Nope. Too many people; too much noise. He ran away and wanted nothing to do with the festivities. Brian had to stay with him as all of the excitement produced a small cluster and I ended up unwrapping his gifts. Once he was presented with the new toys, unwrapped...he was okay with it ;) Favorite toy=the blender.
We took cues from his therapists and got things that served multiple purposes. It's quite an adventure to purchase a toy and think, "Is this going to help with fine motor skills AND critical thinking skills?" and debate within yourself if it is going to be useful. The blender was not so useful, but he is obsessed with mine. Thanks grandma!We were so grateful that we were able to stay with our family for 5 whole days and part of another! It was a miracle in my eyes. Our car was packed to overflowing with all of the medical supplies, IV pole, scales, etc. but we did it! He only needed rescue meds twice while we were gone, which was pretty good withstanding all of the stimulation he was going through. We even went to the park and lasted for 30 minutes before he started seizing. It was great! Being together was what mattered most and it happened.
Giving is much more fun than receiving. Brian also had a birthday during all of this madness! He got a bunch of grey socks (his only request) and a couple of other things. He wanted an ice cream cake, so I was glad to give it to him ;)Wow, we're getting old.
May we all remember the main reason for this time of year.
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