Cole is sporting a new style today. We went in early this morning to the cardiologist (after being up until 11 on a post-Versed high) and got hooked up to this fancy machine.
Cole's heartbeat will be recorded for 24 hours. This is to rule out
Long QT Syndrome, another factor for that nasty nemesis SUDEP. Another Dravet child passed away in her sleep this week. She was only one day away from turning two years old.
So far, Cole thinks the Holter is cool. Hope it stays that way! ;) The recording box is kept on by this little backpack, or as we are calling it, "Holter top". You never know, we could start a fashion trend. The latest and greatest accessory!
Cole's heartbeat will be recorded for 24 hours. This is to rule out Long QT Syndrome, another factor for that nasty nemesis SUDEP. Another Dravet child passed away in her sleep this week. She was only one day away from turning two years old.
So far, Cole thinks the Holter is cool. Hope it stays that way! ;) The recording box is kept on by this little backpack, or as we are calling it, "Holter top". You never know, we could start a fashion trend. The latest and greatest accessory!
I love the GREAT criss cross back straps!! Quite the look. Some serious prayer must be working to get him not to completely disconnect that thing. He being an electronics genius, that thing must be VERY tempting:) Kiss him for me.
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