We made it!
This morning we decided to be brave (stupid?) and take Cole to the family party. Word on the street was that it was going to be much more low-key than usual due to less people attending the feast.
The worst that could happen was that he would have a seizure...we do that all of the time, right? OR that he can get sick, and we have to postpone his surgery next week. Hey, surgery can be postponed; we're thankful that it isn't an emergent need right now! Besides, Cole is going to go to pre-school next week for the beginning of "the test", most likely he'll end up sick after spending time with 15 other little kids! ;)
SO-we did it. We came late, left early, but we went. We had turkey and pie and had a nap. Hit the most important highlights of a Thanksgiving day. A lot of work to make this holiday not just another day, but it was worth it.
I think that we are getting more used to our new life. There are times that it is worth the risk, like Thanksgiving. Other times, not so much, like the grocery store. Now we have to gear up for Christmas!
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Nice job getting out. I know other people's lives are enhanced when we expose these little ones to them. They are not only a great blessing to us but to our families, friends, and strangers that we meet. Our son, Marc, is 12 now and we have spent the last 9 years going to Snowbird for Thanksgiving. We have helped Marc to Ski with a harness and he loves to go to the swimming pools. Yes, all with risk but always worth the effort. We have had many missionary opportunities as we meet people because Marc breaks down people's hesitation to talk with one another. Yes, there is always risk, we lose him every year, he has seizures every year and sometimes he get's sick and the seizures get worse for a time. But it has always been worth it.
ReplyDeleteI was wondering what surgery Cole was scheduled to have? Is it Dravet related?
SO glad you got to enjoy Thanksgiving...with family. Glad that everything was OK with Cole.
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