No, I'm not talking about fascinators, or the royal wedding (though it was nice of them to consider me when planning their wedding date)...I mean Keppra rage.
Speaking of fascinators....one of my besties, Erin, made me a lovely one for my birthday/wedding watching. She's great!
It's hard for me to notice subtle changes in Cole, like how tall he is, his sentence structure improving, etc. I am in it every day all day and just have to go with the flow. It's the people who have time away that notice the change from point A to point B. When you are there for the in between stuff, it is a little harder to recognize the difference.
I know that Cole has been more violent lately, but there is also a lot of other things that have been going on. Only recently, did my brain kick in and say, "HELLO, Niki! He's acted like this before". My theory is that being off of the diet has made him process his meds differently and he is becoming toxic on Keppra again. At least that is what I am telling myself today. I need an answer for the little troll I've been dealing with lately.
His tests came back negative for diabetes insipidous, but I am not convinced since the samples could have been tainted. Yes, more talk of samples and bodily fluids...really, it's our life right now. There has still been the copious amounts of urine and multiple loads of laundry. Who knew taking him off of fat could have so many repercussions? Hopefully things calm down soon, since we are heading to Miami. The insurance has approved it! It will still take quite a chunk of money, but it is worth it. We are willing to do anything, take him anywhere. Even when he acts like a troll sometimes.
Saturday, April 30, 2011
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Keppra makes some kids "like a horned devil" as one of our neurologist put it!! I hope you can figure out why he is being difficult. love you
ReplyDeletealso, I was not trying to say that Cole is a lil devil. I was just meaning that it really affects some kiddos. sorry :)
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