Cole's level came back...after 4 phone calls and a few e-mails :)
It was 95, a trough, first thing in the morning before his dose. The spectrum for therapeutic is typically 50-100, except that each kid is different, and some need to be above this range in order to have the maximum effect. All in all, it was on the high end of this range for a relatively small dose.
Our plan of action is to decrease the depakote from 500 mg a day (250 morning and night) to just a small dose of 125mg daily to see how the myoclonics react. We decided to try this first before going straight to adding another med. One that is not FDA approved and therefore costs more probably had something to do with it too!
Today was the first dose on the new regimen, after skipping his usual 250 last night. Let's just say...I'm glad we went down instead of up! Cole has had the best day seizure-wise that he has had in weeks. The morning was rough and there was still plenty of activity, but nothing compared to the last few days of constant jerking and twitching.
Fingers crossed.
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