Wednesday, July 20, 2011

Dravet.org

The IDEA-League has changed their name to dravet.org!

Still a wonderful community that we are grateful to be a part of, still up-to-date incredible information...just a different name.

One of these days I am going to get Cole's picture taken so that it can be on the website. They keep asking, and I keep getting busier! I need to update his story and update this site too. Falling on the priority list as other things come up, but hopefully eventually others who don't read Epilepsy Warriors can get hope and feel validation from reading about our little warrior.

Check out their new site. It is very user friendly and has great information about Dravet.

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